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its official.. I have Addisons Options
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barbara-o
#21 Posted : Wednesday, December 23, 2009 1:08:20 PM Quote
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Joined: 12/3/2009
Posts: 690
Dear Jenni,

Thank you for confirming my suspicions about the link between taking steroids long term and the risk of Addison's disease. I really don't know what to say and feel for you, the medics having known about the potential risks should have provided better care and closer monitoring of your condition.

Over the years I have taken oral steroids off and on for my asthma and more recently for RA. Now that I have been diagnosed with a growth in my adrenal gland, which is currently being investigated, I have decided, if I can cope, to try and avoid taking steroids.

Take care and thinking of you,

Love,

Barbara
XXXXXX
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jeanb
#22 Posted : Wednesday, December 23, 2009 2:38:54 PM Quote
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Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hi Hon

I just don't know what to say - other than I am so sorry you have all this worry. I KNOW we have talked about this before, but just want to send you a big .

Take care, Barbara and have a wonderful, magical Christmas.

Lots of love
Jeanxxxx
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lyn2
#23 Posted : Wednesday, December 23, 2009 4:57:02 PM Quote
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Joined: 12/10/2009
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Location: Notts
So sorry about this, Jenni, words don't seem enough. I just hope you get the correct treatment, and a drug that works for you.

Love Lyn
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lizziemouse
#24 Posted : Wednesday, December 23, 2009 9:14:30 PM Quote
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lots of love from me too Jenni
i feel shocked at you finding out this way, NOT nice! This has to be another thing to add to the complaint letter!
I really hope now that finding suitable treatments will be more proactively prioritised.
Take care, lots of love Liz -.... ooo i feel really cross about this - i just cannot believe you got this information by post and during holidaytime too when less likely to be able to discuss with anyone,
at least u got us here - someone will be here all the time im sure - even on xmas day................. altho' unfortunately i definitely cant guarantee that anyone will be sober! xxxxx
Love and HUGS ~Liz xxxxx
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JulieM
#25 Posted : Thursday, December 24, 2009 10:57:52 AM Quote
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Joined: 12/4/2009
Posts: 1,524
Location: W. Yorkshire
Now thats what i call greedy Jenni.Confused
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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FIONA752
#26 Posted : Friday, December 25, 2009 6:43:42 PM Quote
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Joined: 12/4/2009
Posts: 312
Dear Jenni, firstly, Merry Christmas to you and your family.
Secondly I felt so sorry to read your post about Addisons.
I hope that with the correct medications things will improve for you now.
Much love,
FionaHuh
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